About Us

Alex Ochan

Alex is the Northern Region Patient Coordinator and a professional fumigator living with severe Haemophilia A. He is a key figure in regional advocacy, dedicating his time to community outreach and awareness programs throughout Northern Uganda. By combining his professional career with impactful volunteer leadership, Alex serves as an inspiring example of self-sufficiency and dedication for the entire haemophilia community.

Nzeghuliro Ahmed

Ahmed is a highly distinguished educator and community leader with over 25 years of experience in primary education. He holds a Bachelor’s Degree in Primary Education and a Diploma in Education from Ibanda University, forming a solid academic foundation for his extensive career in school administration and pedagogy.

Nakimera Sanat

Nakimera Sanat is a dedicated community advocate and resilient entrepreneur who has turned personal adversity into a platform for collective empowerment. As a mother of two sons living with severe Haemophilia B (Factor IX deficiency), she possesses an intimate, first-hand understanding of the complexities involved in managing chronic, life-threatening conditions within a resource-limited setting. Her journey is defined by an unwavering commitment to her children’s health and a proactive approach to navigating the healthcare landscape. Beyond her role as a caregiver, Nakimera successfully operates her own business, demonstrating a sophisticated balance of her business ambition and parental dedication. She is a firm believer that financial independence is a cornerstone of effective caregiving, particularly for parents of children with special health needs.

Jengo Asuman

Jengo Asuman is a resilient entrepreneur and a distinguished community leader within the Haemophilia Foundation Uganda (HFU). As a businessman, he brings a pragmatic and results-oriented approach to his advocacy work, balancing the demands of his business demands with an unwavering commitment to health equity. His personal connection to the cause is profound, as he is the father of three children living with Haemophilia A (Factor VIII deficiency), a role that has given him an intimate understanding of the daily medical and emotional complexities faced by affected families. Driven by his experiences navigating the healthcare system for his children, Jengo has become a vital voice for regional representation. He serves as a dedicated volunteer who ensures that the specific needs of his region are not overlooked. He is a staunch advocate for the decentralization of care, working tirelessly to ensure that patients in his community receive the same quality of treatment and support as those in urban centers.